Showing posts with label boyfriend. Show all posts
Showing posts with label boyfriend. Show all posts

31 March 2010

To Be or Not to Be


This is nothing new. For most, something snaps when they're at "death's door," as it were. Suddenly, there's a sense of urgency to everything and bucket lists are made. My bucket list was short and simple. No, there was no jumping out of planes or swimming with dolphins. All I wanted was to do was to go forward the trip to Miami Beach that had been planned and confirmed long before I was diagnosed with cancer.

Was this wise? Foolish? Risky? Irresponsible? Did a cancer patient have any business being in Miami Beach, revelling in the sun?

What was I thinking, going at the onset of my chemotherapy treatment? I wasn't. I didn't want to think. I wanted to forget! For one week, I wanted to pretend I wasn't sick. I wanted to be vibrant, fabulous, and alive in Miami Beach, Florida! So, armed with my meds, suntan lotion, and flip flops, my boyfriend and I threw caution to the wind and headed for Miami Beach, two weeks after my first chemo session.

. . . Oh, but sometimes desire and intention overtakes ability and capacity . . .

Soon after landing Miami Beach, things went awry. That familiar pain on my left side and the swelling of the leg visited once more (Oh no! Blood clots!), accompanied by a blinding headache and profuse bleeding. Immediately, I regretted my being on vacation and being thousands of miles away from home and my doctors. So much for forgetting I was sick. And talk about feeling foolish, vulnerable and scared! So, instead of going out on that perfect balmy Florida night to start my carefree vacation, I hid under the sheets with fear and loathing that I had made the wrong decision after all.

. . . Although, ability and capacity CAN match up with desires and intentions . . .

During my phone consult with my oncologist the next day, the swelling on my left leg and the pain on my left side had subsided. Apparently, that long plane ride aggravated the swelling. But after being stretched in bed overnight, things got better. So, my doctor told me to not overdo anything and keep to my Coumadin and Lovenox therapy everyday. Okay. So, I wasn't going to die. That was that. Time to start forgetting and start partying like it's 1999 (well, actually, it was 2009)! No more fretting. When life deals you lemonade, sip mojitos!


. . . I denied cancer to dance and revel like I wasn't sick. . .

But, the irony of this all, of course, is that the very thing I was trying to get away from was with me throughout our vacation. I really couldn't get away from it, could I? Especially because, right on schedule, my hair started to fall out in big chunks! There was hair everywhere but my head. And really, there probably was no worse place for this to happen than in Miami Beach, where every woman (it seemed to me) was perfect and beautiful. I was warned about it and knew it was coming. But, nothing really prepared me for the reality of hair loss. Nothing! It was horrific. I felt like a deformed monster. Oh! And there was nothing like hair loss to snap me back from forgetting. There were times when I couldn't bring myself to get out of bed and face all the fabulous beautiful people of Miami Beach. Thankfully, I came prepared -- thanks to my boyfriend who bought me a chic short haircut before the trip, a fabulous cowboy hat plus a few scarves just for the occasion (He's got me!). So, with a little courage and disguise, I still managed to go and enjoy myself even though every morning, I hated what I saw in the mirror.

. . .Even though cancer insisted its presence, I kept covering it up to forget about it. . .

Though, on our last morning in Miami Beach, I woke my boyfriend up and told him it was time -- time to face cancer head on. No more forgetting. No more pretending it wasn't there. So, we walked hand-in-hand into a Supercuts right in the middle of Washington Avenue to have my head shaved.

08 March 2010

He's Got Me


Titles are insufficient sometimes. And certainly, "boyfriend" does not do justice to mine. I mean, yes, he's a friend (the best!). But he's no boy. He's a man. Manfriend? (Uhm...no. Let's shelf that one.). Actually, "partner" is a better term, but it's so blah and cowboy'ish. I just keep hearing John Wayne in my head saying "Howdy, pardner!" Though we're not in business together, we are in the truest sense, partners. Still, the word just doesn't ring my bell. But, let's not get trapped in a cycle of semantics here. It doesn't do him justice, but "what's in a name?" as the Bard wrote. All told, he is my friend, cohort, consort, comfort, partner, playmate, my "blanket" counselor, cuddler, schlepper, comic relief, intellectual challenge, all around safe place, my very own Wesley (but not the "dreaded Pirate Roberts), my protector, and lots more I couldn't even think of at the moment. And there's no no one word for that. Is there? So please indulge me as I revert to "boyfriend," insufficient though it might be.


I thought this would be the easiest of posts to write. How difficult can it be to talk about one's relationship and one's boyfriend? The thing is, this post does not attest to who he is in totality, or to our relationship as a whole (that would require a whole other blog). What I want to show here is how absolutely key his role was during my bout with cancer. That although Dr. T and his team were responsible for the medical aspect of my healing, my boyfriend was there to help me sort out everything else. Afterall, I only saw my medical team once every three weeks. Then, there was the everyday life to contend with -- the aftermath of chemo, as it were. And during those times, my boyfriend was the partner with whom to walk that road. He took to the task no questions asked, only with lots of willingness and love.

He took a huge weight off me. One of the things I was really concerned about was the burden cancer would put on my daughter. I did not want her saddled with looking after me, while she was working full time and going to college full time. I know she would have nursed me, without question. But, it was the last thing I wanted for her. It was bad enough for her to contend with the fact that her mother's really ill, let alone be charged with my care as well. My boyfriend did not even need to hear this concern articulated. Immediately, he just took on the role of my caretaker, lifting the responsibility off my daughter. My "awful" post-chemo days were usually spent under his care. What a burden lifted off my daugther and off me! I'd like to say too that it is a testament to who he is that my daughter felt absolutely confident and secure that I was being properly looked after.

He respected and understood my personal boundaries. There's a thin line between being always there for someone and smothering them with your presence. My boyfriend walks that line beautifully. He has great respect for my personal space and boundaries and trusts my judgement about that. But he's also sensitive to those times when I couldn't articulate a need. He just knew when and where to be there for me. Truly, he understands boundaries and allowed (and provided for) me the space to be whatever and whomever I want to be. He never imposed on me his deep desire to help, more than I allowed him. And certainly, he was quick to accept his role in the whole scheme of my healing, no questions asked--just a readiness to be where I needed him to be.

He created a safe place where I could exhale. When I was sick, I had this self-imposed need to maintain my composure, thereby setting the tone on how my illness would be deemed by others. I wanted to demonstrate control by maintaining a positive, energetic and "can-do" attitude for my family and loved ones. That way, they would all stop worrying and not be pained with the burden of cancer. As Nurse J said, "set the tone." And that, I certainly did. But, there were times when I didn't feel like being a "teal warrior" or I felt too scared to be positive. Yes, there were times when I would succumb and cry that I couldn't do it. During those times, I knew that I could go to my boyfriend and fall apart. He created a safe place for me in which to collapse. He listened and did not judge, because he knew that I just needed to do that. It didn't mean that I had given up. It just meant that I needed to exhale from time to time -- take a load off. And that was just fine. My boyfriend made a space for me to "just be" -- whatever that was: silly, angry, childish, preachy, quiet, restless....anything. Having that space when I was sick was key to recharging so that I would be ready for the next rounds. It was invaluable!

He took "romance" to the next level. What woman hasn't gone crazy over the prospect of losing her hair? Or having dry, ashen skin? Or looking generally sick? Or not having eyebrows or eyelashes? It's maddening! And it doesn't get any better when reality strikes. I certainly couldn't look at myself in the mirror and reflect back a beautiful, desirable woman. But my boyfriend, never looked at me like that. He always made me feel like the most beautiful, desirable and loved woman. In his presence, I never felt bald or not feminine, though my reflection in the mirror betrayed that. A bouquet of flowers, a surpise picnic on a Sunday, something sparkly to wear, breakfast in bed...these are all well-accepted gestures of romance (some of which I have been privileged to receive) But, I think that all gets trumped by my boyfriend's shaving my head every weekend and looking at me as if I were the most beautiful woman there is. Now, that's romantic!

Above and beyond. I know that the words "to have and to hold, in sickness and in health, for richer or for poorer..." are exclusive to the marriage vow. But I would like to borrow them for purposes of this post. Yes. He and I have had our fun, health, and "richness." But, last year was a scary time of sickness and poorness for me. And my boyfriend was there to "have and to hold" me through it all with unfaltered reliability and love. Indeed, I count myself fortunate to have him as a "partner" with whom to travel the road behind and the road ahead. That road would have been steeper, colder, darker and lonelier without him.

Thank you, babe!